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Survivor Stories

As shocking as it can be to receive a diagnosis of gynecologic cancer, we want you to know that No One Fights Alone. We hope these personal stories of diagnosis, treatment and survival from women who have persevered and triumphed over these diseases provide comfort and support for your journey.  

If you would like to share your story, please send it to ogccmail@gmail.com

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Resource Guide

OGCC/Rhonda’s Club has compiled a resource guide for newly diagnosed ovarian and endometrial cancer patients with practical information on what to expect during treatment, frequently asked questions, a glossary of medical terms and other useful facts. This guide is included in our patient care bags distributed free of charge to patients.

rhonda oziel

Rhonda’s Story

When she learned in 1994 that she had ovarian cancer, Ms. Rhonda Oziel was confronted with a lack of readily available information on the disease and its treatment.

She became a founder of the Ovarian & Gynecologic Cancer Coalition of Greater Washington, which was later renamed OGCC/Rhonda’s Club in her honor.

Our Patient Support Line is Open...

If you're an ovarian cancer patient and are feeling overwhelmed by these challenging times and unsure of what it means for you, remember that help is just a phone call away. Our national organization, OCRA, has an oncology social worker available to chat Monday through Friday. Call 212-268-1002 and ask for Tracy.  If she misses your call she'll get back to you within 24 hours.

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New Services for Uterine Cancer Patients

Share our Cancer Support has set up a hotline to answer your Uterine Cancer questions.  Whether you have a uterine sarcoma or endometrial cancer diagnosis or you're a friend, family member or caregiver of someone who does, Call 844-582-6005.
SHARE also has added a Clinical Trial Matching Service offering patients a free, confidential, personalized Clinical Trial referral service.  You can access this service at:  https://www.sharecancersupport.org/breast-cancer/clinical-trial-matching-service/

Upcoming Events

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Join the Ovarian and Gynecologic Cancer Coalition/Rhonda’s Club for a webinar on Monday, September 27, 2021 at 6:30 pm EDT featuring Nicole Peña Chappell MD discussing novel gynecologic cancer therapies from the Society of Gynecologic Oncologists and the American Society of Clinical Oncology 2021 annual meetings.  

REGISTER HERE TO RECEIVE ZOOM LINK:   https://forms.gle/DokqsPN9T18i68tJ9

 

Register for OCRA's Virtual National Conference September 28-October 1, 2021

OCRA (Ovarian Cancer Research Alliance), parent organization of OGCC/Rhonda's Club, will be hosting its annual conference virtually September 28th – October 1st.  Join survivors and others from the comfort of home to learn about new advances in ovarian cancer research, treatments for people with ovarian cancer and ways to connect with the community. You'll hear from top researchers and practitioners from across the nation and have a chance to ask questions.  Register at:  https://ocrahope.org/events/conference/

Get Involved

Research Opportunity for Survivors with a Genetic Mutation:  Connecting Families to Overcome Ovarian Cancer” is a research study funded by the National Cancer Institute and conducted at Emory University. They are recruiting survivors and their close relatives to become “citizen scientists” and help them develop a website and print materials to expand access to genetic services for families affected by ovarian cancer.

To summarize the study:

"Today it is known that 1 in 5 women with ovarian cancer have an inherited mutation in cancer-causing genes. Early identification of mutation carriers can enable life-saving prevention options. Recent guidelines encourage all women with ovarian cancer and their close blood relatives to consider genetic counseling. Currently, we have little guidance on how to make sure that survivors and their close relatives are aware of this recommendation and able to access genetic services. “Connecting Families to Overcome Ovarian Cancer” is funded by the National Cancer Institute. The study team is seeking 30 ovarian cancer survivors and relatives to participate in an online working group for Fall, 2020. The group will discuss ways to reach out to ovarian cancer survivors and their relatives to help them consider free genetic counseling services. The information gathered will be directly applied to develop the content and format for a website that will be offered to ovarian cancer survivors and their close relatives who may carry genetic mutations."

For more information, click on this link:                                

file:///C:/Users/Jo/AppData/Local/Temp/Connecting%20Families%20to%20Overcome%20Ovarian%20Cancer_Study%20Flyer.pdf

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The Ovarian Cancer Research Alliance (OCRA) invites you to .....

Be a voice for the ovarian cancer community.  Registration is now open for the 2021 Advocate Leader program.
Apply today to join survivors, caregivers and activists from across the country using their voices to affect change for those touched by ovarian cancer.

As an Advocate Leader, you'll learn how to educate federal and state policymakers about the disease, protect funding for life-saving research, and fight for expanded access to treatment and care. No legislative or advocacy experience is necessary to apply—just a willingness to learn and, most importantly, to speak up on behalf of the patients and families who need it.  For more information, go to:

 https://ocrahope.org/advocacy/advocate-leader-application/?utm_source=OCRAEmail&utm_medium=Email&utm_campaign=Advocacy&utm_content=2021ApplicationsOpen

                               

Coping with COVID-19                              

The COVID-19 epidemic has unsettled everyone’s life, including forcing OGCC/Rhonda’s Club to postpone several events and classes planned for spring.  We intend to re-schedule when public health conditions allow.  In the meantime, we’ve compiled the following resources to guide you, especially those in treatment who may have questions about maintaining your treatment schedule, visiting hospitals and doctors’ offices, and similar concerns. 

from our national organization, OCRA…
https://ocrfa.activehosted.com/social/06997f04a7db92466a2baa6ebc8b872d.840

from the Foundation for Women’s Cancer…
https://www.foundationforwomenscancer.org/news-stories/covid-19/

from the Dana Farber Cancer Institute….
https://blog.dana-farber.org/insight/2020/03/tips-for-keeping-your-mind-healthy-and-active-in-the-time-of-covid-19/?utm_source=newsletter&utm_medium=email&utm_content=Read%20More%20%3E&utm_campaign=spotlight

If current conditions find you shopping online...
Please sign up with at SmileAmazon.com to support Rhonda’s Club at no cost to you every time you shop online at Amazon.  Just log onto Smile.Amazon.com and designate the “Ovarian Cancer Coalition of Greater Washington” (that’s us) and Amazon will donate a portion of the money you spend to Rhonda’s Club.  We greatly appreciate your support!

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In the News...

JoAnn Symons, chair of Rhonda’s Club and an ovarian cancer survivor, was interviewed for WTOP News on doctor-patient communication at:

https://wtop.com/health-fitness/2019/02/the-bad-news-giving-and-receiving-a-terminal-diagnosis/

 
RHONDA'S CLUB 2020 ANNUAL REPORT

Rhonda’s Club is empowered through contributions of time, energy and dollars to support survivors of gynecologic cancers in direct and practical ways, engage in outreach to our community, raise awareness of these diseases, and promote medical research to find better treatments and cures. We have assessed both the measurable and intangible outcomes of our programs in the areas of Medical Education, Assistance to Survivors, Public Awareness and Outreach, and Research in 2020 and present them here for your review. Please read more about our activities here.

We are grateful for your moral and financial support.  Every year, we lose too many good women to gynecologic cancers.  Please help us turn the tide against these devastating diseases.

Thank you,

JoAnn Symons, chair
Clare Donelan, Treasurer
Pat Goldman, founding member
Susan Kim
Mary Kinler
Karen Ribler
Christy Schmidt
Patricia Seggerman, Secretary
Paige Whitaker
Susan Yaffe-Oziel
Dr. Maya Soetoro-Ng, Honorary Member




 

Thank you to our supporters!

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