Our Patient Support Line is Open...
If you're an ovarian cancer patient and are feeling overwhelmed by these challenging times and unsure of what it means for you, remember that help is just a phone call away. Our national organization, OCRA, has an oncology social worker available to chat Monday through Friday. Call 212-268-1002 and ask for Tracy. If she misses your call she'll get back to you within 24 hours.
Research Opportunity for Survivors with a Genetic Mutation
“Connecting Families to Overcome Ovarian Cancer” is a research study funded by the National Cancer Institute and conducted at Emory University. They are recruiting survivors and their close relatives to become “citizen scientists” and help them develop a website and print materials to expand access to genetic services for families affected by ovarian cancer.
To summarize the study...
"Today it is known that 1 in 5 women with ovarian cancer have an inherited mutation in cancer-causing genes. Early identification of mutation carriers can enable life-saving prevention options. Recent guidelines encourage all women with ovarian cancer and their close blood relatives to consider genetic counseling. Currently, we have little guidance on how to make sure that survivors and their close relatives are aware of this recommendation and able to access genetic services. “Connecting Families to Overcome Ovarian Cancer” is funded by the National Cancer Institute. The study team is seeking 30 ovarian cancer survivors and relatives to participate in an online working group for Fall, 2020. The group will discuss ways to reach out to ovarian cancer survivors and their relatives to help them consider free genetic counseling services. The information gathered will be directly applied to develop the content and format for a website that will be offered to ovarian cancer survivors and their close relatives who may carry genetic mutations."
For more information, click on this link:
Coping with COVID-19
The COVID-19 epidemic has unsettled everyone’s life, including forcing OGCC/Rhonda’s Club to postpone several events and classes planned for spring. We intend to re-schedule when public health conditions allow. In the meantime, we’ve compiled the following resources to guide you, especially those in treatment who may have questions about maintaining your treatment schedule, visiting hospitals and doctors’ offices, and similar concerns.
from our national organization, OCRA…
from the Foundation for Women’s Cancer…
from the Dana Farber Cancer Institute….
If current conditions find you shopping online...
Please sign up with at SmileAmazon.com to support Rhonda’s Club at no cost to you every time you shop online at Amazon. Just log onto Smile.Amazon.com and designate the “Ovarian Cancer Coalition of Greater Washington” (that’s us) and Amazon will donate a portion of the money you spend to Rhonda’s Club. We greatly appreciate your support!
Johns Hopkins Medicine/The Sidney Kimmel Comprehensive Cancer Center invites you to its
8th Annual Survivorship Conference -- Surviving & Thriving: Mind, Body & Spirit
A FREE virtual event for patients & caregivers on Thursdays in October from 12 noon – 12:45 PM Virtual Conference Log in from your own home. Register for any number of sessions – or all five!
The series kicks off on Thursday, October 1 with a talk on “Covid and Cancer: What We Have Learned” by Dr. William Nelson Director, Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins Professor of Oncology
Additional Workshops will be:
October 8: Moving and Stretching for Everyone
October 15: Meditation: Your Tool for Relaxation
October 22: Laughter is the Best Medicine!
October 29: Maximizing Survivorship through Palliative Care
To register by September 26 go to http://bit.ly/SurvivorshipConference2020 – or call 410-955-8934
In the News...